Two Words, One Answer.
muscular dystrophy
 Muscular Dystrophy: theFacts $23.95 The medical aspects are dealt with fairly accessibly, but troubles me is the author's tone throughout the book - patronising, and his tendency to make statements that belie an extraordinary ignorance of human beings. What kind of weirdo would write a sentence like "....of course, the death of a child is always tragic, even when it is expected"? There are a few such pronouncements in the book, but the whole thing is saturated with that strange arrogance that only doctors seem to manage - I think it comes from dealing so much with "the sick" and "suffering" family members, that they start thinking that doctors are some higher breed of "healthy" humans who are on earth to offer hope to poor unfortunates. I would not recommend this book for parents.  Muscular Dystrophy Awareness Ribbon Mouse Pad $17.99 The Muscular Dystrophy Ribbon proudly displayed on a mouse pad. There is no better way to achieve awareness for the meaning of the Muscular Dystrophy Ribbon than to display it on your mouse pad for everyone to see. The mouse pad measures at 9.25 x 7.75, it is machine washable, and the colors will not fade or run. Start gaining awareness today by presenting your Muscular Dystrophy Ribbon mouse pad at work or at home. It is certain to keep your mouse rolling in style all while gaining support and awareness!  Muscular Dystrophy (The Facts) $24.95 The muscular dystrophies are a group of genetic diseases that severely affect children and adults. For sufferers and their family, the illness presents enormous physical and psychological challenges. Written specifically for people with muscular dystrophy and their families, this book answers many of the questions asked about how and why muscular dystrophy occurs, and how it will affect the life of a recently diagnosed child. As well as presenting the reader with advice and an explanation of muscular dystrophy, the book also guides the reader towards further information on societies and support groups around the world, and reliable internet resources. It also contains a full glossary to aid the reader in their understanding of the disease. The different types of muscular dystrophy are described throughout with a minimum of technical jargon. Questions relating to exercise, physiotherapy, surgery, and the emotional effects of the diseases are answered, and advice is given on the problems of schooling and choice of career. Since publication of the first edition in 1994, the genes for almost all the different types of dystrophy have been identified, enabling prevention through genetic counselling, therefore relieving some of the worry for affected families. Drawn from his many years of experience treating patients, Professor Emery provides authoritative, yet compassionate advice for people living with this illness. |
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