Prader-willi Syndrome

Self concept in people with Williams syndrome and Prader-Willi syndrome [An article from: Research in Developmental Disabilities]
$5.95
This digital document is a journal article from Research in Developmental Disabilities, published by Elsevier in 2004. The article is delivered in HTML format and is available in your Amazon.com Media Library immediately after purchase. You can view it with any web browser.

Description:
This study explored self concepts in matched groups of adolescents and adults with Williams syndrome (WS) and Prader-Willi syndrome (PWS), using Damon and Hart's [Self-understanding in Childhood and Adolescence, Cambridge University Press, New York, 1988] semi-structured interview. The main findings were that the WS participants were more productive in their responses to the interview, providing more self characteristics. The WS group also used more social and psychological categories in describing their self concept, and their responses were in general at a higher level than the responses for the PWS group. There were significant age-group differences, with the adolescents offering more self descriptions that were coded as physical and active, whereas the adults gave more social and psychological responses. Different themes were emphasized in the interviews from the two groups. These themes reflected the distinct phenotypes associated with these disorders, the participants life experiences, and their overall attitudes toward their syndrome.

Prader-Willi Syndrome: A practical guide (Resource Materials for Teachers Series)
$39.95
An examination of the cognitive, medical and psychological aspects of educating a child with Prader-Willi Syndrome. Practical advice is given for every part of the schooling process, from classroom management to helping the child with difficult lessons such as maths. The section on further education discusses the ethical issues concerned with learning skills for independent living and the potential for future employment.

Prader-willi Syndrome: Coping With the Disease - Living With Those Involved
$26.50
Over the past years, research into the Prader-Willi syndrome (PWS) and its treatment options has progressed enormously and new insights have greatly improved the quality of life of those affected. For many years, Urs Eiholzer has been engaged in the care of children with PWS and their families. He has published a great number of seminal scientific articles and contributions and supports a comprehensive, integrated treatment approach, taking into account both the biological and the psychological aspects of the syndrome. This easily understandable book is specifically suited for non-professionals and presents the clinical picture of the syndrome, its genetic cause, state-of-the-art research results and treatment options as used in the author's out-patient clinic. The text is illustrated with graphics and complemented by an abundance of pictures. This publication addresses not only the family members of the affected children, but also those who have contact with them - from the neighbor to the pediatrician.

Prader-Willi Syndrome Medical Guide
$9.99
The Prader-Willi Syndrome Medical Guide is a publication which has been designed to better help readers understand Prader-Willi Syndrome. This Qontro Medical Guide has been designed with the reader in mind, and is a useful information source for readers at all levels looking to learn more about Prader-Willi Syndrome. The Prader-Willi Syndrome Medical Guide is highly recommended for those interested in understanding and learning more about Prader-Willi Syndrome.